Merry Christmas and Happy New Year!
I’m not even sure where to start. Reading through my previous post I feel like the worry and anxiety was a lifetime ago!
When my appointment came round I was very eager to talk Dr Whittle about my little episode. However, with high stable counts again their really does seem like nothing to worry about at the moment. That said, I don’t have another appointment for 12 months!!! Now that is Remission! It’s so difficult to get my head around but I am over the moon. As long as I don’t have any reoccurring symptoms, I should be hospital free. (Also providing I don’t have a clumsy episode that lands me in Accident and Emergency, fingers crossed-ey!?) Continue reading
After my bizarre episode, one of my first ports of call, was the PDSA forum. Everyone there is so helpful, and most, like Sandi, have seen it all. I felt bad posting after leaving it so long without popping by. Sandi and a few other suggested getting checked out for something called APS. APS is a auto immune disorder linked with ITP, where your antibodies basically cause blood clots and TIA’s (mini-strokes). They were concerned that the migraine may have been a TIA, or a warning sign for APS. It can be tested with a simple blood test. I tried my hardest not to panic, but I’d be lying if I said didn’t.
On Monday 23rd October, something very strange happened. I was driving back from work when I started to lose the feeling in my right hand and the right hand side of my face. I have terrible circulation and its getting pretty cold now, so I didn’t think much more of it. Although when i got home, I was finding it really difficult to speak, I knew exactly what I wanted to say, but every time I opened my mouth, it was like I was speaking a alien language. No matter how hard I tried, the words and letters were all muddled up. I started to feel really uneasy and strange, so when my speech returned to normal I booked myself into the doctors, I figured it might be something to do with my thyroid again. Continue reading
Over the last few months I have been very busy. After Septmeber ended I decided to focus on recuperating and re-energising. The fundraising event at work was a massive success and we not only managed to raise loads of awareness but £453 from online and in store donations. Not bad for a weeks work!
Many people within the ITP world will know Meg Brewster for her brilliant blog ITPANDME.COM. However Meg’s talents to not end there. After 7 years of living with ITP, she has just published a book called ‘How to heal a Bruise‘. I have been incredibly lucky to have already read the book which has recently gone on sale.
Happy ITP Awareness Month!!
September is finally here! For most it’s a time for heading back to school or work. The holidays are over and it’s time to get back to business. So far this month has been incredibly busy for me, and it seems like there is still a lot more to come…
HAPPY ITP AWARENESS MONTH EVERYONE!
Today I attended my second ITP convention in Bedfordshire. The Support Association was celebrating their 20th Anniversary since the foundation was founded, alongside the Grand opening of the new Headquarters to be known as ‘The Platelet Mission’. Midsomer Murder star Neil Dudgeon cut the purple ribbon that hung from the door, alongside a great speech recognising great things to come. Unlike like the last convention, we had guests that had travelled all the way from the Netherlands to celebrate the opening of the new headquarters. A special thanks was given to the ‘Cavaliers’ whom had raised over £33,000 for the Association after losing a fellow family member with ITP to a severe head injury. In recognition of the money raised and the loss of 23 year old Steven, a room was named the Steven Sim’s room.
Well WOW! The last couple of months have been amazing. I had an amazing 21st Birthday, celebrating with all my nearest and dearest, and I have just received the brilliant news that I am still in remission, life really is good right now! You go little platelets!
It has been 6 months since I was diagnosed with ITP. Since then I have suffered with excessive bleeding (resulting in my nose being cauterised); Chemical meningitis caused by immunoglobulin; excessive weight gain alongside some other nasty side effects from the dreaded steroids, and an underative thyroid. This week has being a massive turning point for me. Not only are my platelets high, steady and stable, but my thyroid levels have also returned to normal!!! Continue reading
Meet Nicholas McCarney, a 21 year old inspiration from Illinois, United States. Despite having a very rough period of time in his life when diagnosed, his strength and positivity really is inspirational. Enjoy! Continue reading